We are home.
This is great because, obviously, we are HOME.
This is also not-so-great in the fact that we came home pre-emptively due to the inflammation of Rebecca’s liver. If that sounds backward, let me explain. Because Rebecca’s liver enzymes tripled in number post-surgery, we were forced to stop her PPN feedings and her infusions. We must protect her liver.
In the meantime, Rebecca took a bad turn with an extreme pain factor that hit below her scar line in the center of her abdomen. The pain spasms in waves, creating nausea that turns into serious vomiting episodes. This terrified us all, so the surgeons ordered STAT MRI scans. The scans verified no blockage inside her intestines, which meant the pain is coming from the surrounding abdominal cavity. We have no good answer as to this continuing pain cycle outside of liver inflammation in combination with post-operative complications. One thought is Rebecca’s muscle layers were cut during her scar tissue removal process and Rebecca’s fragile constitution is slow to heal the damaged areas.
When the PPN heart-feedings and infusions stopped, I realized we were back in what I affectionately deem “the hospital waiting game”. Rebecca sat in the hospital doing nothing other than IV fluids, pain-control, wound-care and daily lab work. At first glance, this might seem like a long-list, but in actuality, we have gone home in far more complex situations. If you did not know this about me before, I would like to announce I am a self-proclaimed “passable” wound care expert after Rebecca’s open transplant scar in 2014. Our current and brilliant wound care specialist at University Hospital, Veronica, walks us step by step thorough our newest gaping stomach hole. So Rebecca’s current wound does not scare me at all (okay, maybe a little but we’ve still got this).
Because of Rebecca’s new situation, I asked the team for an early discharge. If we are waiting on the liver’s recovery before taking our next step, then we could wait from home. And so, WE ARE HOME.
Rebecca wants to experience everything graduation-related she possibly can, while she can, even if that means only a few minutes at a time. This morning, Leon Springs Elementary hosted their Senior parade. Leon Springs rallied around all 3 of my children, loved and provided a home for them during some of their hardest years. They are our family. Despite having a rough morning, Rebecca miraculously participated in the parade. Nicholas wheeled her down the hallways and even carried her up the stairs with her other 2021 classmates while the elementary children cheered with all their might. The teachers stood in lines to get pictures and sent their heartfelt congratulations. Tears brimmed our eyes with incredible thankfulness that God found a way for this precious moment to happen.
The class of 2021 wore t-shirts of the colleges they were attending along with their graduation robe. Rebecca wore her Harvard t-shirt (no slight to A&M but she doesn’t own an A&M t-shirt yet!) My favorite moment was when a young child saw Rebecca’s shirt and made her a poster that said, “Good Luck in Harvard”. Rebecca will take that poster with her to college….
Thank you Lord for this beautiful memory. An unexpected miracle for sure.
Love to each of you,